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N.G. Andersson et al.
Timone, AP-HM, and INSERM, INRA, C2VN, Faculté de Médecine, Aix-Marseille University, Marseille, France; A Rosa Cid, Unidad de Hemostasia y Trombosis, Hospital Universitario y Politécnico La Fe, Valencia, Spain; S Claeyssens, Centre Regional d’Hemophilie, Centre Hospitalo Universitaire, Toulouse, France; C Escuriola, HZRM Hämophilie Zentrum Rhein Main GmbH, Mörfelden-Walldorf, Germany; K Fischer, Van Creveld Kliniek, University Medical Center Utrecht, Utrecht, The Netherlands; C Van Geet, Catholic University of Leuven, Campus Gasthuisberg, Service of Pediatric Haematology, Leuven, Belgium; R Kobelt, Hämophiliezentrum, Wabern and Children's Hospital of the University of Berne, Switzerland; C Königs, J .W. Goethe University Hospital, Department of Pediatrics, Frankfurt, Germany; K Kurnik, Dr. V. Haunersches Kinderspital, University of Munich, Munich, Germany; R Liesner, Hemophilia Center, Department of Haematology, Great Ormond Street Hospital for Children, London, UK; R Ljung, Department of Clinical Sciences, Lund University, Lund; Department of Pediatrics and Malmö Centre for Thrombosis and Haemostasis, Skåne University Hospital, Malmö, Sweden; A Mäkipernaa, Children’s Hospital , Helsinki University Central Hospital and University of Helsinki, Helsinki, Finland; A Molinari, Dipartimento di Ematologia ed Oncologia, Unità Trombosi ed Emostasi, Ospedale Pediatrico Giannina Gaslini, Genova, Italy; W Muntean, Universitäts- Klinik für Kinder- und Jugendheilkunde, Graz, Austria; B Nolan, Department of Paediatric Haematology, Our Lady’s
Children’s Hospital for Sick Children, Crumlin, Dublin, Ireland; J Oldenburg, Institut für Experimentelle Hämatologie und Transfusionsmedizin, Universitätsklinikum Bonn, Germany; R Pérez Garrido, Hospital General Unidad de Hemofilia, Hospitales Universitarios Virgen del Rocio, Sevilla, Spain; H Platokouki, Haemophilia-Haemostasis Unit, St. Sophia Children’s Hospital, Athens, Greece; A Rafowicz, Centre de Référence pour le Traitement des Maladies Hémorragiques (CRTH), Hôpital Bicêtre, Kremlin Bicêtre AP-HP , France; S Ranta, Department of Pediatrics, Clinic of Coagulation Disorders, Karolinska Hospital, Stockholm,Sweden; E Santagostino, ME Mancuso, Angelo Bianchi Bonomi Hemophilia and Thrombosis Center, Fondazione, IRCCS Ca’ Granda, Ospedale Maggiore Policlinico, Milan, Italy; T Stamm Mikkelsen, Department of Pediatrics, University Hospital of Aarhus at Skejby, Aarhus, Denmark; A Thomas, Royal Hospital for Sick Children, Edinburgh, UK; M Williams, Department of Haematology, The Children’s Hospital, Birmingham, UK.
Israel
G Kenet, National Hemophilia Center, Ministry of Health, Sheba Medical Center, Tel Hashomer, Israel
Canada
M Carcao, Division of Haematology/Oncology, Hospital for Sick Children, Toronto, Canada; G Rivard, Division of Hematology/Oncology, Hôpital St Justine, Montréal, Canada.
References
1. Stieltjes N, Calvez T, Demiguel V, et al. Intracranial haemorrhages in French haemophilia patients (1991-2001): clinical presentation, management and prognosis factors for death. Haemophilia. 2005;11 (5):452-458.
2. Klinge J, Auberger K, Auerswald G, Brackmann HH, Mauz-Korholz C, Kreuz W. Prevalence and outcome of intracranial haemorrhage in haemophiliacs--a survey of the paediatric group of the German Society of Thrombosis and Haemostasis (GTH). Eur J Pediatr. 1999;158 Suppl 3:S162-165.
3. Gouw SC, van der Bom JG, Marijke van den Berg H. Treatment-related risk factors of inhibitor development in previously untreated patients with hemophilia A: the CANAL cohort study. Blood. 2007;109 (11):4648-4654.
4. Kulkarni R, Lusher JM. Intracranial and extracranial hemorrhages in newborns with hemophilia: a review of the literature. J Pediatr Hematol Oncol. 1999;21(4):289-295.
5. Ljung R, Lindgren AC, Petrini P, Tengborn L. Normal vaginal delivery is to be recom- mended for haemophilia carrier gravidae. Acta Paediatr. 1994;83(6):609-611.
6. Revel-Vilk S, Golomb MR, Achonu C, et al. Effect of intracranial bleeds on the health and quality of life of boys with hemophilia. J Pediatr. 2004;144(4):490-495.
7. Davies J, Kadir RA. Mode of delivery and cranial bleeding in newborns with
haemophilia: a systematic review and meta-analysis of the literature. Haemophilia. 2016;22(1):32-38. 552.
8. Richards M, Lavigne Lissalde G, Combescure C, et al. Neonatal bleeding in haemophilia: a European cohort study. Br J Haematol. 2012;156(3):374-382.
9. Nazir HF, Al Lawati T, Beshlawi I, et al. Mode of delivery and risk of intracranial haemorrhage in newborns with severe haemophilia A: a multicentre study in Gulf region. Haemophilia. 2016;22(3):e134-138.
10. Ljung R. The optimal mode of delivery for the haemophilia carrier expecting an affect- ed infant is vaginal delivery. Haemophilia. 2010;16(3):415-419.
11. James AH, Hoots K. The optimal mode of delivery for the haemophilia carrier expect- ing an affected infant is caesarean delivery. Haemophilia. 2010;16(3):420-424.
12. Towner D, Castro MA, Eby-Wilkens E, Gilbert WM. Effect of mode of delivery in nulliparous women on neonatal intracra- nial injury. N Engl J Med. 1999;341 (23):1709-1714.
13. Kasper CK, Lin JC. Prevalence of sporadic and familial haemophilia. Haemophilia. 2007;13(1):90-92.
14. Fischer K, Ljung R, Platokouki H, et al. Prospective observational cohort studies for studying rare diseases: the European PedNet Haemophilia Registry. Haemophilia. 2014;20(4):e280-286.
15. Chambost H, Gaboulaud V, Coatmelec B, Rafowicz A, Schneider P, Calvez T. What factors influence the age at diagnosis of
16. Stoll BJ, Hansen NI, Bell EF, et al. Trends in Care Practices, Morbidity, and Mortality of Extremely Preterm Neonates, 1993-2012. Jama. 2015;314(10):1039-1051.
17. Ljung RC. Intracranial haemorrhage in haemophilia A and B. Br J Haematol. 2008;140(4):378-384.
18. Palomo Bravo A, Nunez R, Gutierrez Pimentel MJ, Nieto MD, Cos C, Perez R. Haemophilia neonates: mode of delivery and perinatal complications. Haemophilia. 2016;22(3):e225-228.
19. Chalmers EA, Alamelu J, Collins PW, et al. Intracranial haemorrhage in children with inherited bleeding disorders in the UK 2003-2015: A national cohort study. Haemophilia. 2018;24(4):641-647.
20. Kulkarni R, Presley RJ, Lusher JM, et al. Complications of haemophilia in babies (first two years of life): a report from the Centers for Disease Control and Prevention Universal Data Collection System. Haemophilia. 2017;23(2):207-214.
21. Martensson A, Tedgard U, Ljung R. Prenatal diagnosis of haemophilia in Sweden now more commonly used for psychological preparation than termination of pregnancy. Haemophilia. 2014;20 (6):854-858.
22. Witmer CM. Low mortality from intracra- nial haemorrhage in paediatric patients with haemophilia. Haemophilia. 2015;21 (5):e359-363.
hemophilia? Results of the French hemo-
philia cohort. J Pediatr. 2002;141(4):548-
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